A Surprise, Part 3

Hi again. This is Part 3 of my original “A Surprise” post; my latest breast cancer update.

The plan for me is a lumpectomy, followed by radiation, followed by Tamoxifan. I just found out yesterday that my surgery is scheduled for next Tues., June 2. I am actually looking forward to it because I am feeling so much more positive by having a plan in place.

Sadly, our medical system is absurdly complicated these days. Of course, to someone of my generation, who vividly remembers when doctors did house calls, the current system seems to be all about protecting the medical profession first, patients second.

NOTE: I mean no disrespect to anyone in the medical field. I believe that it is the system that has become badly flawed, not the professionals.

For me, the most difficult part of this is not having a liaison, if you will; a “go-to” person who can answer questions, find out whether or not you have the right information, whether your medical people have all the pertinent details about you, the patient, and so on.

When I first started down this road, I was of course devastated (to say the least) about finding out I had breast cancer. So, while meeting with my assigned group of professionals (oncologist, surgeon, “navigator” and social worker), all I could hear was the blood pounding in my head to the rhythm of “I have cancer, I have cancer, I have cancer!” I literally could not hear more than that. I was terrified, plain and simple.

By the time I left, I was literally left holding a bag (a purple one reading “I am not afraid of storms for I am learning to sail my ship.”) full of things like a pink journal, a few pieces of candy, a scarf (what, were they telling me was going to lose my hair?!), brochures, and so on. Nice touch, but just a roadmap would have been more practical. You know, like who to call once the dust settles in my mind.

The hardest part of this journey has been trying to track down information and hearing, ‘well, you need to call so and so for that,” or “our office hasn’t received that yet,” “I haven’t heard anything.” That alone made this whole experience truly frustrating and scarier than it needed to be.

I understand from my wonderful Reiki master, Marilynn Carter, that there is a book, “Prepare for Surgery” by Peggy Huddleston, that explains a whole process about talking to the body prior to surgery. It recommends bringing the doctors and staff into it as well. I am hoping I can find it before Tuesday. Also, I am pleased that so many hospitals offer Reiki before and after surgery as well. Needless to say, I will be checking the hospital to be sure they offer it.

So–all that said, I think I have clear sailing before me. Again, to anyone reading this going through a similar experience, please know that I am with you in spirit. You are not alone, and neither am I.

 

4 thoughts on “A Surprise, Part 3

  1. pamkirst2014 says:

    I will be thinking about you Tuesday, and waiting to hear how things went, Lulu. Thank you for sharing this journey with us!

    • lulujbf7 says:

      Hi Pam,

      As always, thanks for reading. I will keep posting post-surgery (ha, ha).

      Your blog is amazing. I so enjoy reading it, and I especially love your “Loolie” tales!

      • pamkirst2014 says:

        Thanks, Lulu…One of the many things I love about blogging is the chance to share our journeys and to get to know kindred spirits I’d never, otherwise, have a chance to connect with. It does not surprise me at all that, faced with a pretty big life challenge, you take the time to send warm words of encouragement! I will look forward to your post-post!!!!

  2. lulujbf7 says:

    Thanks, Pam!

    I love that about blogging, too. You DO get to know great people and learn about their lives and interests. It’s a great community, isn’t it?

    I’ll keep you posted–with a ‘post-post!’ 🙂

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